The absolute WORST thing for my brain now is stress. I just cannot take too much of it and if I get too much I simply freak out.

If I am already stressed then adding to it will end with unpleasant results.

This is a message to anyone caring for those with similar conditions to mine. If you see the person you are caring for is already very stressed out, then don’t do anything to add to the load they are already under.




There are times when I feel very stressed without having any reason to do so.

Noise more than anything else contributes to the stress. I seek peace and quiet whenever I can find it, which is rare.

As I become more dependent on others, I am losing my ability to just be alone for a while.

I can go nowhere without someone taking me there and while it is nice to have people who care about me enough to want to do that, I miss just being able to go somewhere and do something ON MY OWN.

I have next to no personal space and more and more I am treated as an invalid. Yes I know I manage to damage myself, stick knives into my hand when cutting food, spill hot oil on myself and do all sorts of stupid clumsy things but I still have a need to try and do what I can.

There are days when I just want to shut myself off from everyone, to just be without having to respond to others needs. It isn’t everyday, it isn’t even often, but there are days, like today, when I would just like to be left alone…..